So I decided to post a little background for those interested. I was diagnosed almost 2 years ago with hyperprolactinoma due to infertility. My levels at that time were 60 and my MRI showed a tumor 7 mm. My doctor put me on bromocriptine and clomid. I was pregnant the next month! We were so thrilled!!! 9 weeks later we miscarried. We didn't find out until my 12 week appointment when they doc couldn't find a heartbeat and so he did an ultrasound and confirmed what the heartbeat monitor told us. After that, I went back on Bromocriptine and clomid. I was on them for 5 months before we concieved again!
Last August I gave birth to a beautiful, healthy baby boy. I started nursing and I started getting the headaches. (I presently struggle with headaches, loss of energy, and milk production that is out of control!) Once my baby was about 2 months old I talked to my obgyn about my prolactinoma and we got that ball rolling again. I had another MRI and a series of bloodtests. My tumor went from 7mm to 1.2cm from the time I was diagnosed and my prolactin was up to 240! (I think one of the reasons my prolactin and tumor are out of control now is because we never got it under control before I got pregnant.) It was suggested that I go to a Neurosurgeon who suggested I go to an , Endocrinologist who suggested I go do an Eye Specialist....needless to say, it was a busy day!!! I will post what all of them said in my next post. I have a lot of options so consider so wish me luck!
I"m so happy I found this blog. I'm experiencing the same issue. Thank you for posting this!
ReplyDeleteI jus ran into your blog. I just got diagnosed with this as well and trying to find other ways to treat this rather than conventional medicine. :(
ReplyDeleteI have even more information than is on here...It has been way to long since I posted. Contact me at shyanne.Hathaway@gmail.com and I will fill you in with anything you want to know :)
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